Amanda Thomas
Amanda Thomas is a devoted mother from St Athan, Vale of Glamorgan, who is actively seeking support and connections with other parents of children affected by rare genetic conditions. Her son, Jack, is one of only 16 known children worldwide with a life-limiting genetic mutation of the PPFIBP1 gene, which has led to significant health challenges including blindness and seizures. Faced with the heart-wrenching reality of her son's diagnosis, Amanda has left her job in social services to care for Jack full-time while navigating the complexities of his condition and the emotional toll it takes on their family. She is determined to connect with other families in similar situations to offer and receive support, hoping to create a network for those facing the unknowns of such rare genetic disorders.
Global Media Ratings
Countries Mentioned
| Country | Mentions | Sentiment | Dominance | + Persistence | x Population | = Reach | x GDP (millions) | = Power |
|---|---|---|---|---|---|---|---|---|
| United Kingdom | 1 | 7.00 | 0.04% | +0% | 67,886,011 | 29,036 | $2,700,000 | 1,155$ |
| Totals | 1 | 67,886,011 | 29,036 | $2,700,000 | 1,155$ |
Interactive World Map
Each country's color is based on "Mentions" from the table above.
Recent Mentions
United Kingdom:
Amanda is the mother of Jack, who has a rare genetic condition.
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