Amber Jane
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Amber Jane is the mother of Grayson and has been a dedicated advocate for her son's care, managing the challenges of his rare condition while also raising awareness about Lesch-Nyhan Syndrome and its impacts on families.
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Recent news mentions
Amber is Grayson's mother who describes the impact of his rare condition on their family.
3-year-old Waipawa toddler Grayson Jane battles rare Lesch-Nyhan SyndromeThe New Zealand Herald – country’s largest newspaper, est. 1863·
New Zealand· 2026-02-20
New Zealand· 2026-02-20
