Augusto Alejandro Benegas Renaut
Augusto Alejandro Benegas Renaut is a 5-year-old boy diagnosed with a rare and severe neurological condition known as Lipofuscinosis Neuronal Ceroidea Tipo 2 (CLN2), which threatens his life as he requires a specific enzyme replacement therapy that has been hindered by administrative delays in his country's healthcare system.
Born on Jan 01, 2018 (8 years old)
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Paraguay:
Augusto Alejandro Benegas Renaut is a 5-year-old boy diagnosed with a rare neurological condition whose health is at risk due to a lack of medication.
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