Augusto Alejandro Benegas Renaut

Augusto Alejandro Benegas Renaut

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Augusto Alejandro Benegas Renaut is a 5-year-old boy diagnosed with a rare and severe neurological condition known as Lipofuscinosis Neuronal Ceroidea Tipo 2 (CLN2), which threatens his life as he requires a specific enzyme replacement therapy that has been hindered by administrative delays in his country's healthcare system.

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Augusto Alejandro Benegas Renaut is a 5-year-old boy diagnosed with a rare neurological condition whose health is at risk due to a lack of medication.

A contrarreloj: la vida de un niño de 5 años, pende de un hilo por deuda sanitaria - Nacionales
ABC Color – leading Paraguayan newspaper, est. 1967·ParaguayParaguay· 2026-02-25
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