Cesia Carrión
Cesia Carrión is a devoted mother advocating for her son, Liam, who has been diagnosed with infantile ceroidosis lipofuscinosis, a rare genetic disorder. She recently participated in a protest outside the Hospital del Niño Francisco Icaza Bustamante in Guayaquil to demand essential medications for children suffering from rare diseases.
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Ecuador:
Cesia Carrión is a mother advocating for medication for her son diagnosed with a rare disease.
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