Charleigh Pollock

Charleigh Pollock

unknown Canada

Charleigh Pollock is a nine-year-old girl from British Columbia who suffers from Batten disease, a rare and fatal neurodegenerative disorder. She gained attention in the news due to her family's struggle to secure funding for a medication called Brineura, which is crucial for managing her condition. Despite the high cost of approximately $1 million per year and the family's advocacy, the B.C. Health Minister upheld a decision that denied coverage for the drug, leaving her family heartbroken and desperate for alternatives.

Global Media Ratings
Dominance
0.00%
Persistence
1 wks
Reach
103,097
Power
4,612$
Sentiment
6.25
Countries Mentioned
Country Mentions Sentiment Dominance + Persistence x Population = Reach x GDP (millions) = Power
Canada 4 6.25 0.25% +10% 38,005,238 103,097 $1,700,000 4,612$
Totals 4 38,005,238 103,097 $1,700,000 4,612$
Interactive World Map

Each country's color is based on "Mentions" from the table above.

Recent Mentions

Canada Canada: Charleigh Pollock is a 10-year-old B.C. girl who suffers from a rare disorder called Batten disease. 9

The Globe and Mail: Is denying a drug to a terminally ill 10-year-old cruel – or is it good governance?

Canada Canada: Charleigh Pollock is the only person in B.C. with Batten Disease, for whom the drug funding was restored. 6

The Globe and Mail: B.C. health minister apologizes to family of 10-year-old girl with rare disease

Canada Canada: Funding for a nine-year-old girl who has an extremely rare neurodegenerative disease has been restored by the British Columbia government. 5

The Globe and Mail: Minister restores drug funding for B.C. girl with rare disease

Canada Canada: The girl is the only one with Batten disease in the province and fewer than 20 people have it in Canada. 5

The Globe and Mail: Health minister upholds decision to deny rare-disease funds for B.C. girl