Edwin Gavilanes

Edwin Gavilanes is the director of the Fundación Ariel 'Chicho' Gavilanes Distrofia Muscular Duchenne, a foundation dedicated to supporting families affected by Duchenne muscular dystrophy. He has been actively advocating for the rights of patients suffering from this degenerative condition, particularly in the context of inadequate healthcare provision in Ecuador. Recently, he voiced the frustrations of parents seeking essential medication, Translarna, for their children, highlighting the struggles faced within the national healthcare system.