Fide Mirón
Fide Mirón is a patient suffering from Congenital Erythropoietic Porphyria, an extremely rare genetic disorder with fewer than ten known cases in Spain. She has faced significant challenges due to the disease, which has severely affected her appearance and quality of life. Mirón advocates for greater awareness and research funding for rare diseases, emphasizing the need for treatment opportunities and support for patients like herself.
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Spain:
Fide is a patient of Congenital Erythropoietic Porphyria, one of the rarest diseases.
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