Grace Blackett

Grace Blackett is a 30-year-old university student from Wellington, New Zealand, who was diagnosed with classical Ehlers-Danlos syndrome at the age of 22. Following a series of health challenges, including severe migraines and a heart condition, she learned about her hypermobility and the impact of EDS on her body. Despite the limitations imposed by her condition, Grace is studying to become an occupational therapist and actively participates in advocacy work through EDS NZ, helping others navigate the healthcare system and improve support for those with EDS.