Isabel Motero

Isabel Motero is the General Director of the Spanish Federation of Rare Diseases (FEDER), where she has been a prominent advocate for the rights and needs of individuals diagnosed with rare diseases. Recently, she highlighted the alarming statistic that 500,000 people in Sevilla, Spain, are affected by these conditions, and she detailed the extensive register of over 7,000 rare diseases maintained by Orphanet. Under her leadership, FEDER is actively working on the 'Plan de Atención a Personas por Enfermedades Raras en Andalucía 2026-2029', which aims to provide systematic organization and adequate care for patients, ensuring that their conditions receive the attention and resources they require.