Laurence Tiennot-Herment
Laurence Tiennot-Herment is the president of AFM-Téléthon, a prominent French patient advocacy organization focused on rare genetic diseases. She has been a vocal advocate for patients, emphasizing the need for comprehensive care and innovative solutions in the treatment of rare diseases. Recently, she expressed cautious optimism about the French government's new plan to combat rare diseases, highlighting some positive measures while also critiquing it for lacking significant breakthroughs.
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Recent news mentions
Laurence Tiennot-Herment is the president of the AFM-Téléthon and has been vocal about the need for funding for rare diseases.
Le Téléthon obtient 83,5 millions d’euros de promesses de dons, en hausse par rapport à 2024
France· 2025-12-07
Santa met with Laurence Tiennot-Herment, who inspired her with a fierce determination to continue the fight against genetic diseases.
"Je veux redistribuer la lumière que je prends": la chanteuse niçoise Santa sera la marraine du Téléthon les 5 et 6 décembre
Monaco· 2025-09-10
Laurence Tiennot-Herment highlighted the significance of the Téléthon 2024 in advancing therapeutic victories.
"Un tournant dans nos victoires thérapeutiques": un Téléthon gravé dans les mémoires avec près de 97 millions d'euros collectés au TéléthonMonaco· 2025-03-31
Laurence Tiennot-Herment, president of AFM-Téléthon, reacted positively to some measures of the new plan but expressed disappointment that it was not a true break from the past.
Maladies rares : le gouvernement lance un nouveau plan de lutteFrance· 2025-02-25
