Lilya
parentFemale0.0Global Dominance: 0.00%
Lilya is a mother of a child affected by a KCNB1 mutation and an active member of the KCNB1 France association. She has worked alongside other families to support fundraising efforts for research and aid for families dealing with the challenges of this rare genetic disorder.
Power0
Reach0
Collect
Not in the pool (under ¢1).
Recent news mentions
Lilya is a parent who, along with Laurent, is a member of the board of the KCNB1 association.
Mutation KCNB1: un projet de recherche d'envergure lancé grâce à la mobilisation des familles et à la réactivité des scientifiquesMonaco-Matin – newspaper covering the Principality of Monaco·
Monaco· 2025-07-07
Monaco· 2025-07-07
