Luisa Nico

Luisa Nico is a 57-year-old advocate and the president of the Association of Patients with Hypophosphatasia (Api) in Italy. After enduring a long and painful journey, she was diagnosed with hypophosphatasia at the age of 49. With her medical background, albeit incomplete due to personal circumstances, Luisa has dedicated her life to raising awareness about this rare genetic disorder, which causes severe bone and muscle issues. Her mission is to support others affected by the condition, emphasizing the importance of accurate diagnosis and the need for better healthcare resources for rare diseases.