Maile-Triin Nõlvak

Maile-Triin Nõlvak is the mother of Sebastian, a young boy diagnosed with Duchenne muscular dystrophy. She has become a public figure in Estonia due to her family's journey to secure a groundbreaking gene therapy for her son, which has the potential to halt or even reverse the effects of the disease. Maile-Triin has shared her emotional experiences and the overwhelming support they have received from the community, particularly after announcing that Sebastian has successfully undergone the gene therapy.