Maile-Triin Nõlvak

Maile-Triin Nõlvak

parent Estonia

Maile-Triin Nõlvak is the mother of Sebastian, a young boy diagnosed with Duchenne muscular dystrophy. She has become a public figure in Estonia due to her family's journey to secure a groundbreaking gene therapy for her son, which has the potential to halt or even reverse the effects of the disease. Maile-Triin has shared her emotional experiences and the overwhelming support they have received from the community, particularly after announcing that Sebastian has successfully undergone the gene therapy.

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Estonia Estonia: Maile-Triin Nõlvak is Sebastian's mother who expressed her emotional response to the support received for her son's condition. 8

Postimees – major Estonian daily, est. 1857: hakkame seda kuupäeva igal aastal tähistama!