Nahomi
Nahomi is the mother of Rafaella, a young girl diagnosed with Spinal Muscular Atrophy (SMA), a rare genetic disorder that significantly affects mobility and muscular strength. Faced with the emotional and financial challenges of securing a life-saving treatment for her daughter, Nahomi has become an advocate for fundraising efforts to access Zolgensma, a gene therapy that could halt the disease's progression.
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Ecuador:
Nahomi, the mother of Rafaella, is facing a difficult situation after receiving the diagnosis of her daughter.
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