Rosina Maetta

Rosina Maetta

mother Argentina

Rosina Maetta is the mother of Julyan Gottert, a 17-year-old living with Angelman Syndrome. After a challenging journey to diagnosis, she founded 'La Casita de July,' a therapeutic educational center to support children with the syndrome and their families, while actively participating in efforts to improve diagnosis and access to therapies in the region.

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Argentina Argentina: Rosina Maetta is the mother of Julyan Gottert and has founded an educational therapeutic center inspired by her son's journey. 9

Clarín: La enfermedad neurogenética poco frecuente donde la sonrisa de un niño esconde un diagnóstico