Sabili Shugelova
Sabili Shugelova is the chairperson of the public foundation 'Өмірге сен', which supports individuals with neuromuscular diseases in Kazakhstan. She organized an online meeting to discuss the challenges faced by patients with rare diseases, advocating for equal access to therapies and emphasizing the urgent need for government support in securing essential medications.
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Kazakhstan:
Sabili Shugelova, the head of the 'Ömirge sen' fund, organized a meeting that connected over a thousand participants.
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