Saltanat Makhametova

Saltanat Makhametova is a dedicated mother and advocate who has become prominent for her efforts to raise awareness about neurofibromatosis type 1 after her daughter, Aisha, was diagnosed with the condition. She founded the public foundation 'Zhan Zharigy' to support other patients and families affected by this rare genetic disorder in Kazakhstan, highlighting the challenges and emotional toll faced by those living with orphan diseases.