Sanja Kogelnik

Sanja Kogelnik is the president of the Duchenne Muscular Dystrophy Association of Slovenia and a mother of an eleven-and-a-half-year-old boy diagnosed with Duchenne Muscular Dystrophy (DMD). She has been a vocal advocate for the availability of innovative treatments for children with this rare and progressive genetic disorder, expressing hope that the recent approval of givinostat will significantly improve the lives of families affected by DMD in Slovenia.