Sebastian's father

Sebastian's father has been a dedicated advocate for his son's health, working tirelessly with medical professionals at the Tallinn Children's Hospital to explore treatment options for his son's rare condition. Faced with the challenges of obtaining access to one of the world's most expensive medications, Elevydis, he has navigated complex circumstances, including regulatory hurdles and the impact of the COVID-19 pandemic. His efforts have led to securing a necessary genetic test that confirmed the suitability of Elevydis for Sebastian's condition, offering hope for potential improvements in his son's health and quality of life.