Špela Miroševič
Špela Miroševič is the founder and president of a foundation dedicated to supporting children with CTNNB1 syndrome, and she is also the mother of Urban, the first child to receive gene therapy for this condition. Her advocacy has been pivotal in raising awareness and facilitating treatment options for affected families.
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Slovenia:
Špela Miroševič is the founder and president of the foundation and Urban's mother.
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