Stejsi Sprejson

Stejsi Sprejson is a 41-year-old mother from the UK whose life turned into a nightmare when her three-year-old daughter, Tereza, was diagnosed with Batten disease, a rare and fatal neurological disorder. Despite being filled with hope and love for her children, Stejsi is deeply distressed by the prognosis that Tereza may not live beyond ten years and struggles to cope with the rapid decline in her daughter's health. As a mother of seven, she is determined to provide Tereza with the best possible quality of life, navigating the challenges of expensive treatments and the emotional toll of seeing her child suffer. Stejsi's story highlights the harsh realities faced by families dealing with rare diseases and the urgent need for medical advancements.