Valeria Argañaras

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Valeria Argañaras is an Argentine mother who has been in the news for her determination to seek a proper diagnosis and treatment for her daughter, Juana, who was initially misdiagnosed with autism. After extensive medical consultations and genetic testing, Juana was diagnosed with Rett syndrome, a rare neurodevelopmental disorder. Valeria has become an advocate for families affected by complex and rare diseases, connecting with organizations like the Fundación Sin Rett for support and information. Her journey reflects both the challenges faced by families dealing with rare disorders and the hope provided by ongoing research and advancements in treatment options.