Viljem Julijan

Viljem Julijan is a prominent advocate for patients with rare diseases in Slovenia. He is associated with a non-profit organization that aims to improve the lives of individuals suffering from such conditions. Recently, he was in the news for his critical remarks regarding a new law aimed at financing the treatment of rare diseases, which he believes does not adequately address the inclusion of children in the early phases of clinical trials, although he acknowledges the law as a significant step forward.