Annalisa Scopinaro
Annalisa Scopinaro is the president of Uniamo, the Italian Federation of Rare Diseases. She advocates for a holistic approach to patient care through the integration of Health Humanities, which combines arts and sciences to promote health and well-being. Scopinaro is involved in initiatives aimed at raising awareness about rare diseases, including various creative projects that engage young people and enhance understanding of these conditions.
Not in the pool (under ¢1).
Recent news mentions
Annalisa Scopinaro is the president of Uniamo and comments on the challenges faced by people with rare diseases.
Malattie rare: prevenzione e screening neonatali, diagnosi, cure, ricerca
Italy· 2025-07-11
Annalisa Scopinaro is the president of Uniamo, advocating for the rights of people with rare diseases.
Malattie rare: un paziente su 5 assistito fuori Regione. «Viaggi della salute» anche per curare i tumoriItaly· 2025-04-11
Annalisa Scopinaro is the president of Uniamo and advocates for faster procedures in neonatal screening.
Screening neonatale esteso: salva la vita ma, per alcune malattie, si fa solo in poche RegioniItaly· 2025-04-09
Annalisa Scopinaro is the president of Uniamo and emphasizes the importance of scientific research for patients with rare diseases.
Malattie rare, dai test genetici, ai farmaci e alla riabilitazione: tutto quello che bisogna (ancora) fare per chi ne soffreItaly· 2025-03-23
Annalisa Scopinaro is the president of UNIAMO, the Italian Federation of Rare Diseases.
Valentina, i suoi 5 anni e una malattia rarissima. La speranza di una cura (che ad oggi non esiste)Italy· 2025-02-25
Annalisa Scopinaro highlighted the importance of integrating care for people with diseases through Health Humanities.
Malattie rare, il racconto dei ragazzi in brevi video su Instagram per contrastare gli stereotipiItaly· 2025-02-22
Annalisa Scopinaro is the president of Uniamo and emphasizes the importance of a holistic approach to health.
Malattie rare, cosa fare quando un figlio si ammala. Ecco cosa sapereItaly· 2025-02-19
