Guido De Barros
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Guido De Barros is the president of the Voa Voa association, which is dedicated to raising awareness and supporting families affected by rare diseases. He has played a significant role in advocating for neonatal screening for metachromatic leukodystrophy (MLD) in Italy, collaborating with families like Giulia Ferrari's to promote essential healthcare initiatives.
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Recent news mentions
Guido De Barros is the president of the Voa Voa onlus association and father of a child who passed away due to a rare disease.
Screening neonatale esteso: salva la vita ma, per alcune malattie, si fa solo in poche RegioniCorriere della Sera·
Italy· 2025-04-09
Italy· 2025-04-09
Guido de Barros donated his daughter's blood for research to help develop an early diagnosis test for the disease.
Il padre di Sofia, malata come Gioia: «Mia figlia è morta ma le sue gocce di sangue sono servite per il test di diagnosi precoce: tutte le regioni lo adottino»Corriere della Sera·Italy· 2025-03-06
Italy· 2025-03-06
Guido De Barros is the president of the Voa Voa association and is supporting Giulia's cause.
Gioia, la bimba di 3 anni, affetta da leucodistrofia metacromatica. La mamma Giulia: «Camminava male e ora non parla più, si poteva salvare»Corriere della Sera·Italy· 2025-03-06
Italy· 2025-03-06
