
Guido De Barros
Guido De Barros is the president of the Voa Voa association, which is dedicated to raising awareness and supporting families affected by rare diseases. He has played a significant role in advocating for neonatal screening for metachromatic leukodystrophy (MLD) in Italy, collaborating with families like Giulia Ferrari's to promote essential healthcare initiatives.
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Italy:
Guido De Barros is the president of the Voa Voa onlus association and father of a child who passed away due to a rare disease.
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Italy:
Guido de Barros donated his daughter's blood for research to help develop an early diagnosis test for the disease.
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Italy:
Guido De Barros is the president of the Voa Voa association and is supporting Giulia's cause.
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