Giulia Ferrari
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Giulia Ferrari is a 33-year-old mother advocating for the expansion of neonatal screening for metachromatic leukodystrophy in Italy, driven by the tragic diagnosis of her daughter, Gioia.
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Giulia Ferrari is fighting for neonatal screening for metachromatic leukodystrophy to be extended to all Italian regions.
Gioia, la bimba di 3 anni, affetta da leucodistrofia metacromatica. La mamma Giulia: «Camminava male e ora non parla più, si poteva salvare»Corriere della Sera·
Italy· 2025-03-06
Italy· 2025-03-06
Giulia Ferrari is Gioia's mother who is fighting for better screening for the disease.
Gioia, 3 anni, e la leucodistrofia metacromatica diagnosticata troppo tardi: «Non sopravvivrà». Nek sposa la battaglia per lo screening: «Bisogna intervenire»Corriere della Sera·Italy· 2025-03-06
Italy· 2025-03-06