Giulia Ferrari

Giulia Ferrari

parent Italy

Giulia Ferrari is a 33-year-old mother advocating for the expansion of neonatal screening for metachromatic leukodystrophy in Italy, driven by the tragic diagnosis of her daughter, Gioia.

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Recent Mentions

Italy Italy: Giulia Ferrari is fighting for neonatal screening for metachromatic leukodystrophy to be extended to all Italian regions. 9

Gioia Diego Nek Guido De Barros
Corriere della Sera: Gioia, la bimba di 3 anni, affetta da leucodistrofia metacromatica. La mamma Giulia: «Camminava male e ora non parla più, si poteva salvare»

Italy Italy: Giulia Ferrari is Gioia's mother who is fighting for better screening for the disease. 7

Gioia Nek Michele De Pascale
Corriere della Sera: Gioia, 3 anni, e la leucodistrofia metacromatica diagnosticata troppo tardi: «Non sopravvivrà». Nek sposa la battaglia per lo screening: «Bisogna intervenire»