Gioia

Gioia is a three-year-old girl diagnosed with metachromatic leukodystrophy (MLD), a terminal neurodegenerative disease that could have been treated if diagnosed earlier through neonatal screening.

Born on Mar 06, 2020 (5 years old)

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Recent Mentions

Italy: Gioia is a 3-year-old girl suffering from metachromatic leukodystrophy. 5

Giulia Ferrari Diego Nek Guido De Barros

Corriere della Sera: Gioia, la bimba di 3 anni, affetta da leucodistrofia metacromatica. La mamma Giulia: «Camminava male e ora non parla più, si poteva salvare»

Italy: Gioia is a 3-year-old girl suffering from metachromatic leukodystrophy. 5

Laura Cuppini Sofia De Barros

Corriere della Sera: Leucodistrofia metacromatica, cos'è la malattia di cui soffre Gioia (e perché avrebbe potuto salvarsi)

Italy: Gioia is a child suffering from metachromatic leukodystrophy, a terminal neurodegenerative disease. 5

Giulia Ferrari Nek Michele De Pascale

Corriere della Sera: Gioia, 3 anni, e la leucodistrofia metacromatica diagnosticata troppo tardi: «Non sopravvivrà». Nek sposa la battaglia per lo screening: «Bisogna intervenire»