
Craig Coady
Craig Coady is a grieving father who lost his son Rory to Friedreich’s ataxia, a rare genetic disorder that affects the nervous system. He has been vocal about the impact of the recent decision by the HSE Drugs Group not to fund a potentially beneficial drug, omaveloxolone, which could help his surviving son, Paudie, who also suffers from the same condition. Coady has expressed his devastation over the decision and hopes for intervention from government officials to secure treatment for his son.
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Craig Coady lost his son Rory to the disease last September and expressed devastation over the HSE's decision regarding drug funding.
Father of boy with Friedreich’s ataxia devastated as HSE recommends against drug funding – The Irish TimesThe Irish Times – major Irish daily, est. 1859·
Ireland· 2026-08-12




