
Rory Coady
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Rory Coady was a 13-year-old boy who tragically lost his battle with Friedreich’s ataxia, a progressive and debilitating disorder. His experience has highlighted the urgent need for effective treatment options for those affected by this rare disease, bringing attention to the struggles faced by families dealing with similar challenges.
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Recent news mentions
Rory Coady was a 13-year-old boy who lost his life to Friedreich’s ataxia.
Father of boy with Friedreich’s ataxia devastated as HSE recommends against drug funding – The Irish TimesThe Irish Times – major Irish daily, est. 1859·
Ireland· 2026-08-12




