Gregor Bezenšek
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Gregor Bezenšek is the founder of Društvo Viljem Julijan, an organization dedicated to supporting children with Duchenne muscular dystrophy. He has been a key advocate for Matic Žontar, providing support and coordinating fundraising efforts that allowed Matic to travel to the U.S. for a potentially life-saving gene therapy.
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Recent news mentions
Gregor Bezenšek, the founder of the society, emphasized that lawmakers should consider the lives of people rather than just numbers.
Društvo Viljem Julijan poziva k sprejetju zakona o skladu za redke bolezniDelo – major Slovenian daily, est. 1959·
Slovenia· 2026-02-03
Slovenia· 2026-02-03
Gregor Bezenšek is the founder of the Viljem Julijan Society, which advocates for the rights of children with rare diseases.
Starši najtežje bolnih otrok prisiljeni v protestDelo – major Slovenian daily, est. 1959·Slovenia· 2025-09-17
Slovenia· 2025-09-17
Gregor Bezenšek is the founder of Društvo Viljem Julijan who expressed support for Matic's treatment.
Osemletni Matic je že v Ameriki, kmalu bo dobil zdraviloDelo – major Slovenian daily, est. 1959·Slovenia· 2025-05-06
Slovenia· 2025-05-06
