Matic Žontar
Matic Žontar is an eight-year-old boy diagnosed with Duchenne Muscular Dystrophy (DMD), a rare genetic disorder that leads to progressive muscle weakness and disability. Despite appearing like his peers, Matic faces significant health challenges, with an average life expectancy of only 28 years without treatment. His family is actively seeking funding for a revolutionary gene therapy called elevidys, which has shown promise in treating DMD but comes at a staggering cost of 3.2 million euros.
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Recent news mentions
Matic Žontar, an eight-year-old boy with Duchenne muscular dystrophy, recently returned from successful treatment in the USA.
Matic se je vrnil z uspešnega zdravljenja v ZDA in danes odkorakal v šolo
Slovenia· 2025-09-01
Matic Žontar is an eight-year-old boy with Duchenne muscular dystrophy who is receiving treatment in the USA.
Osemletni Matic je že v Ameriki, kmalu bo dobil zdraviloSlovenia· 2025-05-06
Matic Žontar, an eight-year-old boy with Duchenne muscular dystrophy, will be able to receive gene therapy treatment abroad.
Zbrali dva milijona za Matica – na zdravljenje gre že konec aprilaSlovenia· 2025-04-14
Matic Žontar is an eight-year-old boy suffering from a rare genetic disease called Duchenne muscular dystrophy.
Za malega Matica in njegovo zdravljenje je treba zbrati še pol milijonaSlovenia· 2025-03-14
