Matic Žontar

Matic Žontar

patient Slovenia

Matic Žontar is an eight-year-old boy diagnosed with Duchenne Muscular Dystrophy (DMD), a rare genetic disorder that leads to progressive muscle weakness and disability. Despite appearing like his peers, Matic faces significant health challenges, with an average life expectancy of only 28 years without treatment. His family is actively seeking funding for a revolutionary gene therapy called elevidys, which has shown promise in treating DMD but comes at a staggering cost of 3.2 million euros.

Born on Jan 01, 2015 (10 years old)

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Recent Mentions

Slovenia Slovenia: Matic Žontar is an eight-year-old boy with Duchenne muscular dystrophy who is receiving treatment in the USA. 9

Delo – major Slovenian daily, est. 1959: Osemletni Matic je že v Ameriki, kmalu bo dobil zdravilo

Slovenia Slovenia: Matic Žontar, an eight-year-old boy with Duchenne muscular dystrophy, will be able to receive gene therapy treatment abroad. 9

Delo – major Slovenian daily, est. 1959: Zbrali dva milijona za Matica – na zdravljenje gre že konec aprila

Slovenia Slovenia: Matic Žontar is an eight-year-old boy suffering from a rare genetic disease called Duchenne muscular dystrophy. 9

Delo – major Slovenian daily, est. 1959: Za malega Matica in njegovo zdravljenje je treba zbrati še pol milijona