Hailey Weihs

Hailey Weihs

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Hailey Weihs is a mother who fought for access to Zolgensma for her daughter diagnosed with spinal muscular atrophy (SMA). Her experiences highlight the struggles many families face in obtaining costly life-saving treatments and the challenges posed by insurance companies.

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Recent news mentions

Hailey Weihs fought for access to Zolgensma for her daughter, highlighting the struggles parents face with insurance.

What a $2 million per dose gene therapy reveals about drug pricing
CNN·United StatesUnited States· 2025-02-17
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