
Hailey Weihs
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Hailey Weihs is a mother who fought for access to Zolgensma for her daughter diagnosed with spinal muscular atrophy (SMA). Her experiences highlight the struggles many families face in obtaining costly life-saving treatments and the challenges posed by insurance companies.
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Recent news mentions
Hailey Weihs fought for access to Zolgensma for her daughter, highlighting the struggles parents face with insurance.
What a $2 million per dose gene therapy reveals about drug pricingCNN·
United States· 2025-02-17









