
Vincent Gaynor
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Vincent Gaynor is a New York City construction worker and the father of Sophia Gaynor, who was diagnosed with spinal muscular atrophy (SMA). He became a prominent advocate for SMA research through his charity, Sophia's Cure, which he founded to fund groundbreaking gene therapy research, ultimately leading to the development of Zolgensma, the world's most expensive drug.
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Recent news mentions
Vincent Gaynor played a crucial role in fundraising for SMA research through his charity, Sophia's Cure, after his daughter was diagnosed with the disease.
What a $2 million per dose gene therapy reveals about drug pricingCNN·
United States· 2025-02-17









