Samuela

Samuela

parent Italy

Samuela is the mother of Agostino, a 14-year-old boy with CHARGE syndrome, a rare genetic condition that affects multiple sensory functions. She has been a dedicated advocate for her son's development, sharing her experiences of navigating the complexities of his condition and ensuring he receives the necessary support from specialists at the Lega del Filo d'Oro. Through her commitment, she highlights Agostino's individuality beyond his diagnosis, emphasizing hope and resilience in their journey together.

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