Tina Powney

Tina Powney

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Tina Powney, a resident of Shepparton, Victoria, has been living with idiopathic pulmonary arterial hypertension (IPAH) for 26 years, facing significant daily challenges due to her condition. Her current treatment requires a continuous IV infusion managed by a specialized pump, which complicates her daily life. Powney has expressed her hope for access to the newly approved drug Sotatercept, which could drastically improve her quality of life but remains unavailable under Australia's Pharmaceutical Benefits Scheme.

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Recent news mentions

Tina Powney has lived with IPAH for 26 years and struggles with the lack of available treatments in Australia.

18 medicines Australians miss out on
The Sydney Morning Herald·AustraliaAustralia· 2026-07-19
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